What programs are available for people living with epilepsy?
At the Epilepsy Foundation, our programs support people living with epilepsy, families, friends, and caregivers. These programs can tackle complex issues like SUDEP support or simply bring joy to children living with epilepsy. Many of our programs are available through your local Epilepsy Foundation or local partners.
Where can I get help for my child with epilepsy?
We offer programs both nationally and through local Epilepsy Foundations. At the Epilepsy Foundation, our programs support people living with epilepsy, families, friends, and caregivers. These programs can tackle complex issues like SUDEP support or simply bring joy to children living with epilepsy.
What is the Epilepsy Foundation doing?
The Epilepsy Foundation – Supporting people with epilepsy We are working with our partners to create Australia’s national epilepsy plan – Epilepsy Smart Australia We provide support and education to individuals and families living with epilepsy We are leading the charge to find a cure
What do we do to help people with epilepsy?
We provide a range of educational opportunities, programs, and services. We offer programs both nationally and through local Epilepsy Foundations. At the Epilepsy Foundation, our programs support people living with epilepsy, families, friends, and caregivers.
What benefits can I get for epilepsy?
Adults with epilepsy may be eligible for Social Security disability insurance (SSDI, for those who paid taxes into the Social Security system) or Supplemental Security Income (SSI, for low-income people). To qualify for either SSI or SSDI, epileptic seizures have to occur regularly (see below).
What is UCB Patient Assistance Program?
Through the UCB Patient Assistance Program, we provide some medications at no cost to eligible and qualified patients who are uninsured or underinsured who otherwise have no access to the UCB medicines prescribed by their physician.
What local resources are available for someone suffering from epilepsy?
Government AgenciesNational Institute of Neurological Disorders and Stroke (NINDS) ... Health Resources and Services Administration (HRSA) ... EF state affiliates provide services on the local level in many communities. ... American Epilepsy Society. ... National Association of Epilepsy Centers (NAEC) ... Partnership for Drug-Free Kids.More items...
Do you get free prescriptions if you have epilepsy?
People with epilepsy are entitled to free prescriptions for their anti-epileptic medication, as well as for any other prescribed drugs (but not dental treatment or eye tests). This is called 'medical exemption'.
Is patient assistance program legitimate?
Patient assistance programs (PAPs) are usually sponsored by pharmaceutical manufacturers and are promoted as a safety net for Americans who have no health insurance or are underinsured.
What products does UCB make?
NEUROLOGYBriviact (brivaracetam) Epilepsy.Vimpat (lacosamide) Epilepsy.Keppra (levetiracetam) Epilepsy.Nayzilam (midazolam) - For US residents only. Epilepsy - Nasal spray.Neupro (rotigotine) Parkinson's disease.Neupro (rotigotine) Restless Legs Syndrome.Fintepla (fenfluramine) Dravet syndrome / Lennox-Gastaut syndrome.
Does epilepsy qualify as a disability?
Epilepsy is considered a disability and it has a listing in the Social Security Administration (SSA) Blue Book.
What foods triggers epilepsy?
Stimulants such as tea, coffee, chocolate, sugar, sweets, soft drinks, excess salt, spices and animal proteins may trigger seizures by suddenly changing the body's metabolism. Some parents have reported that allergic reactions to certain foods (e.g. white flour) also seem to trigger seizures in their children.
What foods should epileptics avoid?
white bread; non-wholegrain cereals; biscuits and cakes; honey; high-sugar drinks and foods; fruit juices; chips; mashed potatoes; parsnips; dates and watermelon. In general, processed or overcooked foods and over-ripe fruits.
What jobs can't you do with epilepsy?
If you have seizures, you may not be able to do jobs that risk your safety or the safety of other people....These include:jobs that involve driving.working at heights, near open water or fire.working with unguarded machinery.
Can u drive if u have epilepsy?
To drive, you must meet all normal driving requirements and must have been completely free of seizures for one year, with or without taking anti-epileptic drugs (AEDs). Different regulations may apply if your seizures do not affect your consciousness (see below).
What disability does epilepsy fall under?
Epilepsy is one of the disorders in the listing of impairments. The SSA evaluates epilepsy under listing 11.02, for convulsive and nonconvulsive epilepsy. The criteria you need to meet to qualify under listing 11.02 depends on the type and frequency of your seizures, as explained in more detail below.
How do I get Cimzia for free?
(1-866-424-6942). Eligible patients with a valid prescription for CIMZIA can receive treatment with the CIMZIA Prefilled Syringe at no cost for up to two years or until the patient's coverage is approved, whichever comes first.
Who makes Keppra?
The branded version Keppra is manufactured by UCB Pharmaceuticals Inc.
Epilepsy Foundation Training & Education
We offer a variety of educational training programs on epilepsy and Seizure First Aid. These trainings are available online and through your local Epilepsy Foundation.
Individual & Family Services
You and your family are never alone. We can connect you with support groups, travel assistance programs, and respite care for families.
SUDEP Institute
The SUDEP Institute works to prevent sudden unexpected death in epilepsy (SUDEP) through research. It also offers support services to people bereaved by SUDEP and other epilepsy-related deaths.
Camps
Local overnight camps are special places where kids with epilepsy can play, explore, and learn together. With trained counselors and medical professionals on staff, kids can swim, climb, and do activities that might not be possible at other camps.
EpiCon
Join us for our next epilepsy conference, EpiCon. Connect with influencers, learn from world-renowned experts, and engage in a variety of exhibits.
National Epilepsy Education and Awareness Collaborative
The National Epilepsy Education and Awareness Collaborative (NEEAC) is a five-year initiative to increase public and professional understanding of epilepsy. NEEAC improves community partnerships, resources, and care coordination.
Help Fund Epilepsy Foundation Programs
Generous donors are the ones that make our programs possible. Giving to the Epilepsy Foundation means you make the world a safer place for the 3.4 million people in the U.S. who are living with epilepsy and seizures.
Who can get Medicare rebates?
Under this initiative, Medicare rebates are available to patients for selected mental health services provided by general practitioners (GPs), psychiatrists, psychologists (clinical and registered) and eligible social workers and occupational therapists.
How long does it take for a GP to develop a chronic disease management plan?
Chronic Disease Management Plan. If you’ve had a chronic medical condition, such as epilepsy, for at least 6 months you and your GP can agree to a Chronic Disease Management Plan. Your GP can develop a plan that will identify your health care needs, sets out the services your GP provides, and lists what you need to do.
Who is the Epilepsy Foundation?from epilepsyfoundation.org.au
The Epilepsy Foundation has partnered with Seer Medical to develop a new online tool for developing Seizure Management Plans (SMPs). These function the same as EMPs, but are designed for use by anyone who experiences seizures; including those with diagnosed epilepsy, those with undiagnosed epilepsy, and for febrile seizures.
What is an EMMP plan?from epilepsyfoundation.org.au
If have been prescribed emergency medication, it is highly recommended that you work with your doctor to complete an Emergency Medication Management Plan (EMMP). An EMMP describes:
How would you like to be supported during a seizure?from epilepsyfoundation.org.au
How you would like to be supported during seizures. Emergency procedures that should be followed in the event of a seizure. An EMP is a great way of ensuring that all the people in your life understand your epilepsy and how you want to be supported. The plan must be endorsed by your doctor.
When should an EMMP be updated?from epilepsyfoundation.org.au
Emergency procedures. Your EMMP should be updated annually, or earlier if anything related to your epilepsy and emergency medication changes. Your EMMP should be attached to your EMP so that all the information related to your epilepsy is kept in one place.
Why does society understand epilepsy?from epilepsyfoundation.org.au
society understands epilepsy so that people with the condition feel connected and included in the community.
Is the Epilepsy Foundation an equal opportunity employer?from epilepsyfoundation.org.au
The Epilepsy Foundation is an Equal Opportunity Employer. We believe that our people are our greates...
What is patient assistance?
Patient assistance programs are offered by drug manufacturers to provide certain medications at a discount or for free to people who cannot afford them. All major drug companies have patient assistance programs.
What is the Pparx helpline number?
The toll-free helpline is 1-888-477-2669 or look up www.pparx.org.
What is NeedyMeds.org?
NeedyMeds.org is a private nonprofit web site that lets you search for patient assistance programs by drug name. For each drug on the list, NeedyMeds.org gives the program name, phone number, application link, eligibility guidelines, application requirements, and program details.
Who sets eligibility requirements for Medicare?
Eligibility requirements are set by individual drug companies. Patient assistance programs help people of all ages, including children and some programs provide help for people receiving Medicare.
Can you get disability if you have epilepsy?
If you have epilepsy and are unable to work because of your seizures, you may be eligible to receive disability benefits through the Social Security Administration (SSA). The SSA offers monthly benefits to provide financial assistance to adults and children who are unable to work because of medical problems. Click here for more information.
