fibromyalgia patient assistance programs

The list below names just a few of the places people can turn to for help:

• Fibromyalgia Warriors UK Support Group – a Facebook group with thousands of members affected by fibromyalgia, who share opinions, experiences and stories.
• Action on Pain – a UK charity campaigning for people living with chronic pain, which provides a helpline and suggestions of ways to deal with pain.

Full Answer

What is the best organization for fibromyalgia?

1 National Fibromyalgia Association. The National Fibromyalgia Association (NFA) is probably the best-known fibromyalgia charity in the U.S. 2 Fibromyalgia Coalition International. ... 3 National Fibromyalgia & Chronic Pain Association. ... 4 American Chronic Pain Association. ... 5 International Organizations. ...

What are the treatment options for fibromyalgia?

Health care providers usually treat fibromyalgia with a combination of treatments, which may include: Medications, including prescription drugs and over-the-counter pain relievers. Aerobic exercise and muscle strengthening exercise. Patient education classes, usually in primary care or community settings.

Where can I find more information about fibromyalgia?

It has also published the magazine Fibromyalgia AWARE as well as hosting educational conferences. The NFA website provides a wealth of information on the condition as well as a continuing medical education program for doctors and other health-care providers who treat fibromyalgia.

What type of Doctor treats fibromyalgia?

Fibromyalgia should be treated by a health care professional or a team of healthcare professionals who specialize in the treatment of fibromyalgia and other types of arthritis. Doctors who have specialized knowledge about fibromyalgia are called rheumatologists.

How do I get financial help for fibromyalgia?

You can contact the nearest SSA office to apply for disability benefits for fibromyalgia. Most of the information the federal agency collects can be done over the phone, as well as by mail and online. The key is to prove the symptoms of fibromyalgia prevent you from working your current job.

What help is there for people with fibromyalgia?

Ways to treat fibromyalgia painPain relievers. Medication is an option to reduce FM pain. ... Antidepressants. These can help ease pain and fatigue. ... Anticonvulsants. These seizure medications may also help reduce pain. ... Yoga. ... Acupuncture. ... Physical therapy.

Is there a fibromyalgia foundation?

The National Fibromyalgia & Chronic Pain Association (NFMCPA) is a 501(c)3 not for profit organization. We support people with chronic pain illnesses and their families and friends by contributing to caring, professional, and community relationships.

Is there a fibromyalgia website?

Welcome to the National Fibromyalgia Association's website!

Can I get SSI for fibromyalgia?

The Social Security Administration recognizes arthritis and fibromyalgia (FM) as qualifying disabilities for Social Security Disability Income (SSDI).

Does fibromyalgia qualify for disability?

Describing your fibromyalgia symptoms alone will not qualify you for Social Security disability. You have to be specific about signs and physical findings related to fibromyalgia and pain and how that impacts your ability to work. The Social Security staff will consider all your symptoms, including pain.

Is fibromyalgia autoimmune or neurological?

Brain imaging and studies have shown that fibromyalgia is a disorder of the central nervous system. "It's a neurological disease driven by the central nervous system," says Clauw.

Is fibromyalgia a form of arthritis?

While Fibromyalgia is considered an arthritis related condition, it is not a “true form” of arthritis as it does not cause tissue inflammation, nor does it damage joints or muscles.

What are the tests for fibromyalgia?

The FM/a Test is a blood test used for the diagnosis of fibromyalgia. It is available for use in patients of any age who have at least four of the typical symptoms of fibromyalgia.

What are the four stages of fibromyalgia?

Results: There were four parent stages of FM identified and labeled: 1) regional FM with classic symptoms; 2) generalized FM with increasing widespread pain and some additional symptoms; 3) FM with advanced and associated conditions, increasing widespread pain, increased sleep disturbances, and chemical sensitivity; ...

What is the new name for fibromyalgia?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Can fibromyalgia affect your eyes?

Fibromyalgia can be associated with ocular symptoms (foreign body sensation, irritation) and visual disturbances (blurred vision), coexisting with dry eye syndrome and reduced corneal sensitivity.

What is the most effective treatment for fibromyalgia?

First-choice treatments for fibromyalgia are exercise and lifestyle changes. Studies prove these are very effective. Medications might help reduce fibromyalgia pain by 30% in some people. They work best in combination with non-medication therapies.

What are the four stages of fibromyalgia?

Results: There were four parent stages of FM identified and labeled: 1) regional FM with classic symptoms; 2) generalized FM with increasing widespread pain and some additional symptoms; 3) FM with advanced and associated conditions, increasing widespread pain, increased sleep disturbances, and chemical sensitivity; ...

What is the newest treatment for fibromyalgia?

Currently the two drugs that are approved by the United States Food and Drug Administration (FDA) for the management of fibromyalgia are pregabalin and duloxetine. Newer data suggests that milnacipran, a dual norepinephrine and serotonin reuptake inhibitor, may be promising for the treatment of fibromyalgia.

What is the root cause of fibromyalgia?

Fibromyalgia is often triggered by a stressful event, including physical stress or emotional (psychological) stress. Possible triggers for the condition include: an injury. a viral infection.

What is the National Fibromyalgia and Chronic Pain Association?

The National Fibromyalgia & Chronic Pain Association (NFMCPA) says its goal is to promote early diagnosis, drive scientific research for a cure, and facilitate research into appropriate, accessible, and affordable treatments for fibromyalgia.

What are some organizations that help people with fibromyalgia?

Some of them are: The International Myopain Society. European Network of Fibromyalgia Associations.

What is the best charity for fibromyalgia?

The National Fibromyalgia Association (NFA) is probably the best-known fibromyalgia charity in the U.S. It's been a major force behind May 12 fibromyalgia awareness day events around the country for many years. It has also published the magazine Fibromyalgia AWARE as well as hosting educational conferences.

What is the acronym for Fibromyalgia Coalition?

Fibromyalgia Coalition International. On its website, Fibromyalgia Coalition International (FCI) says it wants to be "a beacon of hope for millions of FM/CFS sufferers around the world.".

What is the NFA website?

The NFA website provides a wealth of information on the condition as well as a continuing medical education program for doctors and other health-care providers who treat fibromyalgia. Quick facts on the NFA: Founded: 1997. Charity status: 501 (c)3 non-profit. Location: Orange, California.

Where is FCI located?

Location: Mission, Kansas. Mission statement: FCI's mission is to give hope to everyone suffering with fibromyalgia and chronic fatigue syndrome through extensive research and reporting of natural, proven, and effective therapies that focus on root causes. Resources for you:

Is ACPA a fibromyalgia organization?

While it's not specifically a fibromyalgia-focused organization, people with fibromyalgia can benefit from the support groups, information, and advocacy it provides.

What causes fibromyalgia?from nhs.uk

The exact cause of fibromyalgia is unknown, but it's thought to be related to abnormal levels of certain chemicals in the brain and changes in the way the central nervous system (the brain, spinal cord and nerves) processes pain messages carried around the body.

Why is it not clear how many people are affected by fibromyalgia?from nhs.uk

One of the main reasons it's not clear how many people are affected is because fibromyalgia can be a difficult condition to diagnose. There's no specific test for the condition, and the symptoms can be similar to a number of other conditions.

What is the term for a condition that causes pain all over the body?from nhs.uk

Fibromyalgia, also called fibromyalgia syndrome (FMS), is a long-term condition that causes pain all over the body.

What is the number to call for fibromyalgia?from nhs.uk

If you have any questions about fibromyalgia, call the charity's helpline on 0300 999 3333. The charity also has a network of local support groups you may find helpful and an online community, where you can find out about news, events and ongoing research into the condition.

How to manage fibromyalgia?from nhs.uk

Exercise. As extreme tiredness (fatigue) and pain are 2 of the main symptoms of fibromyalgia, you may find that you're not able to exercise as much as you'd like. But an exercise programme special ly suited to your condition can help you manage your symptoms and improve your overall health.

Why do some people have fibromyalgia?from nhs.uk

It's also suggested that some people are more likely to develop fibromyalgia because of genes inherited from their parents. In many cases, the condition appears to be triggered by a physically or emotionally stressful event, such as: an injury or infection. giving birth.

What causes a person to have a swollen ear?from nhs.uk

In many cases, the condition appears to be triggered by a physically or emotionally stressful event, such as: 1 an injury or infection 2 giving birth 3 having an operation 4 the breakdown of a relationship 5 the death of a loved one

What to do if you can't afford to abide by your treatment plan?

If you can no longer afford to abide by your treatment plan, it may be time to change your medications and complementary therapies altogether , and it’s vital that your doctor is on board.

How to get rid of fibromyalgia?

Get more aerobic exercise. It isn’t an easy and complete solution, but regular exercise can diminish many fibromyalgia symptoms, from depression and anxiety to sleep problems, constipation and fatigue. Every patient’s different, and it can be dangerous to push yourself too hard, but consider adding gradually to your workout routine for more comfort in the long run.

What is TANF in healthcare?

Temporary emergency assistance (TANF). Different states offer temporary assistance for low-income patients, so look into the health and human services (HHS) office near you.

How to improve quality of life?

Train your mind. Negative thinking and depression can spark physical reactions, so it’s no surprise that hypnosis and cognitive behavioral therapy (CBT) have both been shown to improve quality of life. Although formal sessions can be pricey, once you learn the techniques from a cognitive behavioral therapist, you can use them again and again on your own time to relieve stress and pain.

Is fibromyalgia a variable disease?

Fibromyalgia is a varied and variable disease with a range of possible treatments, and it can be a pricey experiment to work through all of the medications and therapies before you land on something that works for you. In most cases, you will need to take some medication, and those drugs can add up to a big financial strain. Take control of your condition and treatment with some research, good communication with your doctor, and an open mind.

Can medication help with fibromyalgia?

Medication is a first line of defense for fibromyalgia, but you may be able to reduce the amount you need to live comfortably. Consider some complementary therapies that can eliminate some of your discomfort and improve your productivity, mood, and general quality of life:

Can I get disability if I have fibromyalgia?

Social security insurance (SSI) . Fibromyalgia disability benefits are a possibility if you can prove your condition is both total and permanent. If you're no longer able to work, you may qualify for social security.

How does CBT help with FM?

CBT involves assisting persons with FM to self-manage their disease by learning and applying a range of cognitive and behavioral techniques. For example, techniques such as relaxation therapy, coping skills, cognitive pain management, and eliciting social support have been shown in several clinical trials to reduce symptoms and improve quality of life ref 3, 5. In addition to formal CBT programs, many communities throughout the United States and abroad have organized FM support groups. These groups often provide important information and have guest speakers who discuss subjects of interest to the FM patient. Moreover, the Arthritis Foundation runs the Fibromyalgia Self-Help Group, a multi-session group intervention that provides information, support, and teaches many behavioral techniques to better manage the symptoms of FM.

What is Fitzcharles's study?

Fitzcharles MA, DaCosta, D., & Poyhia, R. A study of standard care in fibromyalgia syndrome: A favorable outcome. Journal of Rheumatology30 :154-159, 2003.

What is the best treatment for FM?

Antidepressant medications are the most frequently used and best studied drugs for the treatment of FM. A recent review of drug treatments for FM indicates that tricyclic antidepressants (TCA’s), including amitriptyline and doxepin, are effective in treating multiple FM symptoms including pain, sleep disturbance, fatigue, and depression ref 9.

How to treat FM?

This requires a physician and/or health care provider who is knowledgeable about the diagnosis and treatment of FM to listen and work closely with the patient to develop a treatment protocol that addresses the unique needs of the patient.

How to reduce fatigue and depression?

Apart from addressing the depression and pain, it is also important to minimize fatigue by promoting a healthy sleep regimen. This may involve simple behavioral strategies such as going to bed and getting up at the same time every day, making sure that the sleeping environment is conducive to sleep (e.g., a comfortable bed and room temperature), avoiding caffeine, or medications (e.g., zolpidem, zopiclone) to promote restful sleep ref 5.

Does tramadol help with FM?

Tramadol has been shown in several trials to reduce pain but has little or no effect on other symptoms ref 9. Interestingly, non-steroidal anti-inflammatory drugs (NSAIDS) and corticosteroids show no benefit on FM.

Is Johns Hopkins Arthritis Center educational?

All information contained within the Johns Hopkins Arthritis Center website is intended for educational purposes only. Physicians and other health care professionals are encouraged to consult other sources and confirm the information contained within this site. Consumers should never disregard medical advice or delay in seeking it because of something they may have read on this website.

What is fibrocares?

FibroCares is an innovative approach to caring for the community which offers a host of services such as: Emergency Financial Support. Fresh Food/Nutrition.

Why do people need support groups?

Traditionally, support group services are offered to help individuals cope and understand a diagnosis. The reasoning, based on data that is over 30 years old, suggests that these groups help individuals address their fears and concerns in a group setting that can be peer-led or led by a social work professional.