Full Answer
Where is LGS Foundation located?from lgsfoundation.org
The LGS Foundation hosts its first regional support group in San Diego.
Who is the founder of LGS?from lgsfoundation.org
The LGS Foundation is founded by Christina SanInocencio, sister to Michael, an adult living with LGS.
What is GPFA in EEG?from lgsfoundation.org
Generalized paroxysmal fast activity (GPFA) is a pattern seen on the EEG in those with LGS and is usually a sign that a tonic seizure is occurring. It is associated with mental deterioration. GPFA is usually generalized, meaning it occurs on both sides of the brain. GPFA is a burst of rhythmic discharges that occur at a frequency of 10-20 per second. GPFA is often stronger in the frontal lobe and occurs mainly during non-REM sleep.
Why is seizure control important for LGS?from lgsfoundation.org
The LGS Foundation is also working hard to change this. It is believed that seizure control is key to improving developmental outcomes in LGS .
How long can a person with LGS live?from lgsfoundation.org
Those with LGS can live into their 50s or 60s but are also more likely to die prematurely due to the underlying brain disorder, seizures, injuries, accidents, aspiration pneumonia, or Sudden Unexpected Death in Epilepsy (SUDEP).
How long ago did LGS come into our lives?from lgsfoundation.org
Twenty-five years ago, LGS barged into our lives, unannounced and uninvited. While Savannah is doing better today than she ever has, every day I learn of more and more stories of the devastation that LGS is causing to children and adults, just as it has to my family. It’s time to change that!
How many buildings are illuminated for LGS?from lgsfoundation.org
More than 50 buildings and landmarks around the globe Illuminate for LGS to help raise awareness on International LGS Awareness Day and singer-songwriter Noah Guthrie performs an Awareness Day concert.
Mission
The LGS Foundation's mission is to improve the lives of individuals affected by Lennox-Gastaut Syndrome (LGS) through research, family support programs, and education.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
Operations
The people, governance practices, and partners that make the organization tick.
What is a PAP?from boehringer-ingelheim.us
The PAP is one of the four core programs of Boehringer Ingelheim Cares Foundation. The other programs include the Product Donation Program, Financial Contributions Program, and Employee Volunteer Program. Through these programs, Boehringer Ingelheim provides more health in local U.S. communities and around the world. About Boehringer Ingelheim.
What is PAP in Boehringer Ingelheim?from boehringer-ingelheim.us
The PAP is one of the four core programs of Boehringer Ingelheim Cares Foundation.
Does the Foundation increase prescription refills?from boehringer-ingelheim.com
The Foundation is also temporarily increasing the quantity or frequency of prescription medicine refills for all covered medicines to eligible US patients enrolled in its charitable Patient Assistance Program to assure patients they can remain adherent to the treatment they need for their medical conditions.
Does Boehringer Ingelheim Cares offer Medicare?from patientassistance.com
Boehringer Ingelheim CARES Foundation Patient Assistance Program For Medicare Beneficiaries, a patient assistance program provided by Boehringer Ingelheim Pharmaceuticals, Inc., offers the medications listed to the right at no cost to those who are eligible for the program. Eligibility is based off of the following requirements: