Patient-Helpdesk.com

melanoma patient assistance program

by Sharon Robel Published 2 years ago Updated 1 year ago
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What resources are available for cancer patients?

How Do I Find These Resources?Resources.CancerCare. 800-813-HOPE (4673) www.cancercare.org.211 Collaborative. www.211.org.American Cancer Society. 800-227-2345. www.cancer.org.U.S. Administration on Aging. 800-677-1116. www.eldercare.gov.The United Way. (find your local United Way at www.liveunited.org)

How can I help someone with melanoma?

DO bring someone with you to medical appointments. Ask a friend, family member or significant other to join you. Bring a notebook too! DO seek support from friends, family, support groups, mental health professionals and others to help you cope with your diagnosis and treatment.

How long can you live with treated melanoma?

The overall average 5-year survival rate for all patients with melanoma is 92%. This means 92 of every 100 people diagnosed with melanoma will be alive in 5 years. In the very early stages the 5-year survival rate is 99%. Once melanoma has spread to the lymph nodes the 5-year survival rate is 63%.

Can you live a full life after melanoma?

Almost everyone (almost 100%) will survive their cancer for 5 years or more after they are diagnosed. 80 out of 100 people (80%) will survive their cancer for 5 years or more after diagnosis. 70 out of 100 people (70%) will survive their cancer for 5 years or more after they are diagnosed.

What should you not say to someone with melanoma?

Don't say: "You are lucky it's only skin cancer." Don't minimize a person's diagnosis because you think it is a "lesser" cancer than other types. Skin cancer, especially melanoma, is very serious. Instead you might say: "I am glad this type of cancer is easily treated."

What is the 20 year survival rate for melanoma?

At 15 years and 20 years after diagnosis, respective melanoma-specific survival rates were 96.7% and 96.0%, with no significant (P = .

How long does it take for melanoma to spread to organs?

How fast does melanoma spread and grow to local lymph nodes and other organs? “Melanoma can grow extremely quickly and can become life-threatening in as little as six weeks,” noted Dr. Duncanson.

When is melanoma too late?

Melanoma is considered stage 4 when it has metastasized to lymph nodes in a part of the body far from the original tumor or if it has metastasized to internal organs like the lungs, liver, brain, bone or gastrointestinal tract. Symptoms of late-stage skin cancer depend on where the cancer is in the body.

Can you live 10 years with melanoma?

The five-year survival rate for Stage IV melanoma was—one decade ago—about 15% to 20%. The ten-year survival rate was about 10% to 15%.

Can you survive melanoma that has spread to lymph nodes?

According to the American Cancer Society, the five-year survival rate for people diagnosed with melanoma that has spread to nearby lymph nodes or structures (regional spread) is 66 percent. For patients diagnosed with stage 4 melanoma (distant spread), the five-year survival rate is 27 percent.

Can you be in the sun with melanoma?

Suncreen. If you've had melanoma, you should avoid spending too long in the sun. Your skin cancer specialist may suggest a high factor sunscreen such as 50 on any exposed skin. The higher SPF gives you extra protection but no sunscreen can provide 100% protection.

What percent of melanoma is fatal?

5-year relative survival rates for melanoma skin cancerSEER stage5-year relative survival rateLocalized99%Regional68%Distant30%All SEER stages combined93%Mar 1, 2022

How can I help someone with stage 4 melanoma?

Seek social and emotional support For example, it might help to connect with other people who have melanoma. Consider asking your doctor if they know about any local support groups for people with this condition. You can also connect with others through online support groups, discussion boards, or social media.

Is exercise good for melanoma?

In summary, physical activity or exercise did not adversely impact quality of life, objectively-measured or patient-reported outcomes in patients with melanoma.

Can you be in the sun with melanoma?

Suncreen. If you've had melanoma, you should avoid spending too long in the sun. Your skin cancer specialist may suggest a high factor sunscreen such as 50 on any exposed skin. The higher SPF gives you extra protection but no sunscreen can provide 100% protection.

Can melanoma cause depression?

Also, a higher prevalence of anxiety and depression has been identified in patients with advanced melanoma compared to those with early disease [16].

About the Disease

Melanoma (MEL), also known as malignant melanoma, is a type of skin cancer that begins in the melanocytes. MEL affects the integumentary system.

Patients can receive free education and support services

The Melanoma Research Foundation conducts research and educates patients and physicians about prevention, diagnosis and the treatment of melanoma.

What is a melanoma exchange?

The Melanoma Exchange provides a critical platform for all those touched by melanoma to find support and ask questions related to melanoma, melanoma treatment and relevant research, including clinical trials. Group members share personal experiences and insight, the latest treatment news, dispel rumors about clinical trials, and more in this supportive setting. Join the conversation!

Does BRAF test cost?

The Know Now BRAF Testing Program offers BRAF testing at no cost to you—whether or not you are BRAF +. After taking a tissue sample, your doctor will complete and send the Request Form to Quest Diagnostics. Ask your doctor to request a test—they can download the BRAF Test Request Form or get answers to any questions by visiting KnowNowBRAF.com/hcp or calling 1-866-226-8046.

What to do if you can't afford skin cancer?

If you cannot afford to treat your skin cancer (or think you cannot), there are steps you can take to get the treatment you need . The resources in this article can help you get medical care, obtain the medications you need, and even pay for related expenses.

What is cancer net?

Cancer.Net provides links to organizations that offer grants to eligible patients, which can help cover the costs of treatment and other expenses. Obtain the prescription medications you need. If you need medication that you cannot afford, you’re not alone.

What is a patient navigator?

Also called a patient advocate, this person is usually a nurse or social worker, who can help patients get financial support and other services, such as transportation and child care. Contact your state or local department of health.

Can a dermatologist remove skin cancer?

If you have an early skin cancer, your dermatologist can often remove it during a single office visit. Treating skin cancer early helps prevent it from growing deeper or spreading, so you want to treat skin cancer as soon as you’re diagnosed.

Can you afford skin cancer treatment?

If you cannot afford treatment for skin cancer, financial assistance may be available to help you get the medical care and medications you need. Patients are often reluctant to tell their dermatologist or oncologist that they cannot afford to treat their skin cancer.

Does HealthWell provide medical assistance?

Melanoma. HealthWell Foundation provides financial assistance for people receiving Medicare who need help paying for medications. Medicaid recipients: If you’re receiving Medicaid, you can find out about coverage for prescription drugs at: Medicaid.gov: Prescription drugs.

What does it mean to live after melanoma?

Your life after a melanoma diagnosis may be different than before. Survivorship and living with melanoma are terms that have different meanings to different people, but to most, they mean living with, through and beyond a cancer diagnosis. With improvements in diagnosis and treatment, melanoma patients must now consider what these terms mean to them.

What are the emotions associated with melanoma?

A diagnosis of melanoma can spur a range of emotions – from anger, denial and stress to fear, shock and even isolation. These emotions are not limited to patients, but also affect those around them, including caregivers, family members and friends.

How to email MRF nurse?

Email the MRF Nurse: Do you have a specific, more medically based question? If so, you can submit your question to the MRF nurse by emailing [email protected]. You can expect a personalized answer from our experienced nurse within 72 hours.

What is a patient forum?

Patient Forum: The MRF’s online community of patients and caregivers provides a platform to ask questions, get information and network with others.

Does the MRF provide financial assistance?

Although the MRF does not provide financial assistance, many organizations exist that may be able to help you navigate finance or insurance issues during a diagnosis or treatment. Learn more about these organizations and what they can offer.

Where is the American Melanoma Foundation?

The American Melanoma Foundation maintains a support group in San Diego, CA and will advise anyone wanting to start a support group. AMF also gives information about melanoma from screening to staging and clinical trials that patients may wish to join.

What to do if you can't afford skin cancer?

If you cannot afford to treat your skin cancer (or think you cannot), financial assistance may be available to help you get the medical care and medications you need. Treatment is important. It can prevent the cancer from spreading or becoming disfiguring. There are steps you can take to get the treatment you need.

What is a patient advocate?

The Patient Advocate Foundation offers a Personalized Medicine CareLine to assist patients, caregivers and providers who are encountering barriers accessing targeted therapies, immunotherapies or clinical trials that have been recommended. CareLine services include assisting with prior authorizations, screening and enrollment in insurance and social programs, appeals assistance, coding and billing issues, disability eligibility and enrollment, debt crisis and cost of living assistance and identifying solutions to out of pocket medical costs.

What is the Selma Schimmel Vital Grant?

The Selma Schimmel Vital Grant is a financial support program focused on helping patients and families who are enduring financial hardship while battling cancer and other life-threatening illnesses. The Vital Grant program funds things like transportation to treatment, treatment costs, medication, groceries and other expenses. The program is administered by Vital Options International’s partner foundations with the capacity and infrastructure to accept applications from patients and families and distribute the funds.

What is the Patient Advocate Foundation?

The Patient Advocate Foundation serves as an active liaison between the patient and the insurer, employer and/or creditors to ensure access to care, maintenance of employment and reservation of financial stability. Case managers, doctors and attorneys work through the Foundation. View their Case Management services page, or click “Explore Our Resources” on the top menu of the website to see a list of support services offered

Where is Merkel cell carcinoma support group located?

This support group is a flexible, open discussion group located in Seattle, WA for anyone touched by Merkel cell carcinoma (MCC), including patients, spouses, family and friends. This is an informal opportunity to meet others coping with MCC, share stories and information, answer questions and provide support. They have first-hand knowledge and experience to share about treatments, clinical research trials and coping with MCC.

Do hotels near cancer centers offer discounts?

Many hotels near cancer centers and major health care facilities offer discounts to patients. Below is a list of housing resources for patients and their families when they travel for medical treatment.

What is the road to recovery program?

The American Cancer Society Road To Recovery® program is available in some areas. Trained volunteers drive patients and families to hospitals and clinics for treatment. Contact your local American Cancer Society office for more information on the type of transportation program available in your area.

How to keep credit in your home after cancer treatment?

To keep a good credit rating and stay in your home, talk with your creditor or landlord about your situation and try to make special arrangements. Family, friends, or church members may be able to give you short-term help if they’re told about the problem. Talk about your situation with the cancer treatment team social worker who may know of special resources.

What is TANF grant?

Temporary Assistance for Needy Families (TANF) is a grant program for people with low incomes. It provides monthly cash to help pay for food, clothing, housing, utilities, transportation, phone, medical supplies not covered by Medicaid, and other basic needs . (TANF also helps states provide training and jobs for the people in welfare programs.) A social worker can tell you about your state’s plan, or contact your local health or social services department. You can visit them online at https://www.hhs.gov/answers/programs-for-families-and-children/what-is-tanf/index.htm.

What is the number to call for food assistance?

Some families may qualify for more than one type of help. For more information about these programs, call the National Hunger Hotline at 1-866-348-6479 (1-866-3-HUNGRY); for Spanish, call 1-877-842-6273. Or visit www.networks.whyhunger.org/.

How to ask about Snap?

To ask about SNAP by phone, call your state or local health department or social services department, or call 1-800-221-5689 to get the local number.

What to do if you have cancer and need to move out of your home?

Families who need to move out of their homes after a cancer diagnosis should talk with their county department of social services to find out if they can get into low-cost or government-supported housing programs. In some states this may be listed under the health department or welfare department.

Can you get paid for time spent caring for a patient?

A few people are able to get paid for time spent caregiving. Some states have Cash and Counseling Programs that can directly pay some caregivers. You can find out if your state has a program by contacting your local Medicaid office, social services, or health department.

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Melanoma > Exchange

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The Melanoma Exchange provides a critical platform for all those touched by melanoma to find support and ask questions related to melanoma, melanoma treatment and relevant research, including clinical trials. Group members share personal experiences and insight, the latest treatment news, dispel rumors about …
See more on curemelanoma.org

Treatment Guidelines

  • The National Comprehensive Cancer Network (NCCN) has created the NCCN Guidelines for Patients: Melanoma (2018). The guide provides easy-to-read guidance for patients as they navigate melanoma treatment.
See more on curemelanoma.org

Patient Assistance Programs

Support For BRAF Mutation Testing

  • TheKnow Now BRAF Testing Program offers BRAF testing at no cost to you—whether or not you are BRAF+. After taking a tissue sample, your doctor will complete and send the Request Form to Quest Diagnostics. Ask your doctor to request a test—they can download the BRAF Test Request Form or get answers to any questions by visiting KnowNowBRAF.com/hcpor calling 1-866-226-8…
See more on curemelanoma.org

Social Support

  • From emotional support to personal care, these websites provide other social support information that may be helpful. 1. Cancer Support Community 2. Coping with Cancer 3. Look Good Feel Better Program 4. Melanoma > Exchange 5. Patient True Talk
See more on curemelanoma.org

Travel Support

Other Resources

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