PAH Patient Assistance in 2018
- Non-Profit Charitable Foundations (click on each to learn more) The Assistance Fund Good Days PAN Foundation ...
- Manufacturer Assistance Programs United Therapeutic Products : 1-877-948-9136 Adcirca, Orenitram, Remoduiln, Tyvaso Bayer: 1-855-4ADEMPAS (1-855-423-3672) ...
- Specialty Pharmacy Assistance Programs Accredo/CuraScript/ExpressScripts: 1-866-FightPH (1-866-344-4874) Briova/OptumRx: 1-855-856-0536 ...
Full Answer
What is the pediatric assistance fund?
What is the Medicare Extra Help program?
What is the phone number for Medicaid?
What is the National Organization for Rare Disorders?
What to do if you run out of PH?
What is the number to contact for PH?
Who can help with medication costs?
See 4 more
About this website
Does having pulmonary hypertension qualify for disability?
Many patients diagnosed with pulmonary hypertension are considered permanently disabled.
Can you walk with pulmonary hypertension?
Some exercises are better for you if you have PAH. Good choices include: Light aerobic activity, like walking or swimming.
What is the life expectancy of someone with severe pulmonary hypertension?
While there's no cure for PAH, there are effective ways to manage the disease. The median survival [from time of diagnosis] used to be 2.5 years. Now I'd say most patients are living seven to 10 years, and some are living as long as 20 years.
What are the final stages of pulmonary hypertension?
The most common physical symptoms are:feeling more severely out of breath.reducing lung function making breathing harder.having frequent flare-ups.finding it difficult to maintain a healthy body weight due to loss of appetite.feeling more anxious and depressed.
What worsens pulmonary hypertension?
Other things that can raise the risk of pulmonary hypertension include: A family history of the condition. Being overweight. Blood-clotting disorders or a family history of blood clots in the lungs.
Can surgery fix pulmonary hypertension?
CTEPH or chronic thromboembolic pulmonary hypertension is a potentially curable form of pulmonary hypertension. The possible cure is an intense surgery called PTE or pulmonary thromboendarterectomy. The goal of PTE is to remove blood clots from arteries in the lungs.
How long can I live with Stage 4 pulmonary hypertension?
Because the disease often isn't diagnosed until later stages, pulmonary hypertension survival rates are low. Some studies have shown that pulmonary hypertension life expectancy is as little as one year after diagnosis but can be five years or more.
What should I avoid if I have pulmonary hypertension?
Stay away from stimulants Avoiding caffeine and other stimulants, such as alcohol, is necessary for regulating your blood pressure. Try tea and coffee substitutes like chicory if you like a hot beverage in the morning.
Does pulmonary hypertension shorten life?
If the cause of one's PH is irreversible, such as PH due to chronic lung disease or chronic left heart disease, pulmonary hypertension is progressive and eventually leads to death.
Can pulmonary hypertension cause sudden death?
Pulmonary hypertension does not seem to cause sudden death, but, in conjunction with decreased cardiac output, a critical reduction in aortic orifice area, and left ventricular failure, pulmonary hypertension identifies a population at significant risk.
How long can you live on oxygen therapy?
[5] Morbidity and mortality are high despite LTOT, with a median survival of less than 2 years after start of oxygen therapy.
Are there any new treatments for pulmonary hypertension?
Abstract. Riociguat is the first approved medication from the novel class of soluble guanylate cyclase (sGC) stimulators and the only agent approved for treating both chronic thromboembolic hypertension (CTEPH) and pulmonary arterial hypertension (PAH).
How far can you walk with pulmonary hypertension?
The new therapeutic goal for 6MWD in PAH patients has been accepted to be 380-440 m. Although a 6MWD over 400 m is an acceptable value for many PAH patients, it was reported that this may not be adequate in young patients (7). Younger patients may mostly walk a distance over 500 m despite severe PAH (37).
What can I do to help my pulmonary hypertension?
Avoid high altitudes because it can cause your blood to become slightly thicker, which can make pulmonary hypertension and its effects worse. Eat a nutritious diet that is low in salt, including whole grains, vegetables, lean meats and low-fat dairy products. Maintain a healthy weight.
What is the first line treatment for pulmonary hypertension?
Epoprostenol (Flolan) This is the first drug specifically approved for the treatment of pulmonary hypertension. Flolan is the most effective drug for the treatment of advanced disease.
Can pulmonary hypertension go into remission?
There is no chance of remission or a cure with the current treatments available for pulmonary hypertension. Treatments for pulmonary hypertension have advanced within the past decade, but unfortunately, it is still considered a progressive and fatal disease.
Copay Assistance Fund Now Open - Pulmonary Hypertension
In the ever-shifting landscape for copay assistance you have to have patience and perseverance. Yesterday the Copay Assistance Fund announced that they have money to give away to help PAH patients afford their medication.
PAH Patient Financial Help with Medicare, Medicaid & Military Benefits
I can’t breathe! I feel short of breath all of the time. We hear these statements every day at PAH specialty centers. We
Pulmonary Hypertension – Co-Pay Relief
Eligibility Requirements. Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household) ; Insurance Requirements Medicare, Medicaid, or Military Benefits; Must reside and receive treatment in the United States.
New pulmonary hypertension fund opens - PAN Foundation
We help underinsured people with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs and advocating for improved access and affordability.
Patients - The Assistance Fund
Headquarters: The Assistance Fund 4700 Millenia Blvd., Suite 410 Orlando, FL 32839 Washington, DC, Office: 655 15th St. NW, Suite 502
How is financial assistance determined?
Determination of Eligibility for the Financial Assistance Program is made based on review of a complete application and supporting documents, including proof of income, assets, and liabilities. Generally, patients with family income of 150% of the Federal Poverty Level or less may be eligible for a discount of 100%. Patients with family income at 250% of the Federal Poverty Level may be eligible for a discount of at least 80%. Patients and Families who are not eligible for discounts may participate in an established payment plan. Patients and families will not be charged more for Emergency or other medically necessary care than Amounts Generally Billed (AGB) to those patients who have insurance.
How to contact a financial counselor in Punxsutawney?
Phone a Financial Counselor at 814-938-1618 between the hours of 8:00 a.m. and 4:00 p.m. Monday through Friday. Write to the Financial Counselor at Punxsutawney Area Hospital, 81 Hillcrest Drive, Punxsutawney, PA 15767.
Is the chargemaster list the best tool for patients to figure out the cost of their health care services?
The chargemaster list is not the best tool for patients to figure out the cost of their health care services. Most people would not know all the medical codes that would be used for their care before they receive treatment. The prices on the chargemaster list are not the actual payment rates that hospitals receive.
closed
We encourage you to apply for assistance; see the qualifications below.
Copay Assistance Organizations
These sister charities are also dedicated to helping people afford life-changing treatments and medications.
The Patient Assistance Program
The Johnson & Johnson Patient Assistance Foundation, Inc. (JJPAF) is an independent, nonprofit organization. JJPAF gives eligible patients free prescription medicines donated by Johnson & Johnson companies.
How the program works
The Patient Assistance Program covers five pulmonary arterial hypertension (PAH) prescription products as well as over 35 other prescription medications to individuals who meet certain requirements and live in the United States or a U.S. Territory. Check to see if you’re eligible.
About the Johnson & Johnson Patient Assistance Foundation
We are an independent, non-profit organization that is committed to helping patients get free prescription medications.
How Can PAH Patients Apply for Patient Advocate Foundation Assistance?
Patients that meet the above criteria can apply online at www.copays.org or by calling 1-866-512-3861.
What is PAF in healthcare?
The Patient Advocate Foundation (PAF) is one fund that can help this population of PAH patients.
How much does it cost to treat pulmonary arterial hypertension?
With an average treatment cost of around $100,000 per PAH patient per year, financial assistance is in great demand.
Can you discontinue PAH treatment?
These specialty clinics will have the most up to date information on available programs and research protocols that patients may qualify for. Never discontinue treatment without speaking with your provider as this may cause serious side effects.
Do you need a right heart catheterization for PAH?
To receive any PAH treatment a patient should first have a right heart catheterization to confirm the diagnosis . While PAF does not specifically state that a right heart catheterization is required to receive funding they do require a “confirmed diagnosis of Pulmonary Hypertension”. The fund is open to patients within the United States insured by ...
What is pulmonary hypertension?
Pulmonary hypertension (PH), also known as pulmonary arterial hypertension, is a type of high blood pressure that affects arteries in the lungs and heart. It is a rare disease that affects the circulatory system. Source: National Institutes of Health.
What is the American lung association?
The American Lung Association provides patient education and engages in advocacy work and research focused on improving lung health and the prevention of lung disease.
PATIENT TERMS AND CONDITIONS
To enroll in the TYVASO Co-pay Assistance Program, your patients must understand and agree that they currently meet the eligibility criteria and will comply with the terms and conditions described below:
FIGHTING PAH
Patients can visit www.FightingPAH.com for information on PAH, treatment options, financial support, and specialty pharmacies.
Step 1
Check to see if you’re eligible for the program or view eligibility requirements.
Step 4
Have your doctor complete their sections of the application, and sign and date in the "HCP Authorization" section (s) for the product (s) they have prescribed.
Step 5
Submit completed page 2 and the pages your HCP has completed for your prescribed product (s) with documentation to:
Next Steps
Once we receive your application, it will take about three days to review. If the application is missing information, it will take longer. Upon completion of review, we’ll send you a letter to let you know whether you’re eligible. When you apply, please be sure to include all your supporting documents.
Tyvaso Co-Pay Assistance Card
If you have a commercial or private insurance plan, we offer a co-pay assistance card to help cover some of your out-of-pocket expenses.
Patient Assistance Program (PAP)
United Therapeutics offers a free medication program for uninsured and underinsured patients who meet eligibility requirements.
Other financial support resources
There are independent Patient Assistance Programs* available that offer financial assistance to PAH patients in need. Known patient assistance programs that support PAH are listed below, in no particular order.
What is Tyvaso?
TYVASO (treprostinil) is a prescription medicine used in adults to treat pulmonary arterial hypertension (PAH; WHO Group 1), which is high blood pressure in the arteries of your lungs. TYVASO can improve the ability to exercise. Your ability to exercise decreases 4 hours after taking TYVASO.
IMPORTANT SAFETY INFORMATION
Before you take TYVASO, tell your healthcare provider about all of your medical conditions, including if you:
Tyvaso Co-Pay Assistance Card
For patients with commercial or private insurance plans, we offer a co-pay card to help patients cover some of their out-of-pocket expenses.
Patient Assistance Program (PAP) for uninsured or underinsured patients
If your patient does not have insurance, their insurance does not cover the medication, or they are underinsured, United Therapeutics offers medication free of charge to eligible patients. Please contact ASSIST to check your patient’s eligibility.
Important Reminder
Please remind your patients to keep the Specialty Pharmacy informed about their current insurance status.
INDICATION
TYVASO (treprostinil) is a prostacyclin mimetic indicated for the treatment of pulmonary arterial hypertension (PAH; WHO Group 1) to improve exercise ability.
IMPORTANT SAFETY INFORMATION
TYVASO is a pulmonary and systemic vasodilator. In patients with low systemic arterial pressure, TYVASO may produce symptomatic hypotension.
What is the pediatric assistance fund?
The fund assists with co-pays or other costs related to a child’s life-altering medical condition. Applications are considered case by case, and there is no online application. Interested families should contact the HealthWell Foundation at 800-675-8416. See additional guidelines.
What is the Medicare Extra Help program?
Medicare Extra Help: If you use Medicare, you might want to explore a program called “Medicare Extra Help,” which provides reduced prescription drug costs for low-income Medicare recipients. Visit here or call 800-772-1213.
What is the phone number for Medicaid?
Visit here or call 800-772-1213. (TTY users should call 800-325-0778.) Benefits.gov and your state website have additional information about government-funded assistance programs such as Medicaid and CHIP.
What is the National Organization for Rare Disorders?
National Organization for Rare Disorders : Two funds that assist rare disease patients during the COVID-19 pandemic. One program assists with insurance premiums and other medical expenses. The other program assists with non-medical needs such as food, utilities and transportation.
What to do if you run out of PH?
If you believe you could run out of your PH therapy, contact your PH care team now. Don’t wait until you are completely out of medication.
What is the number to contact for PH?
For recommendations about local community resources, contact the Patient Advocate Foundation at 800-532-5274.
Who can help with medication costs?
Your state legislators and members of Congress are potential sources of help and information. They might be familiar with state-specific financial assistance resources for medication costs or other expenses.
