Patient-Helpdesk.com

sarcoma patient assistance

by Annie Rau Published 2 years ago Updated 1 year ago
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What is good for sarcoma cancer?

In general, sarcoma treatment may include chemotherapy, radiation therapy and surgery. For example, treatment for osteosarcoma may involve nine weeks of chemotherapy, surgery to remove the tumor and rebuild the bone and another five months of chemotherapy.

Does MD Anderson have financial assistance?

A financial assistance program provides coverage for MD Anderson care to cancer patients who meet residency and financial eligibility requirements. Additionally, the institution participates in the Texas Medicaid Program that provides state and federal support for certain low-income people.

What is the most effective treatment for sarcoma?

The only way to cure a soft tissue sarcoma is to remove it with surgery, so surgery is part of the treatment for all soft tissue sarcomas whenever possible.

Can you recover from sarcoma?

A sarcoma is considered stage IV when it has spread to distant parts of the body. Stage IV sarcomas are rarely curable. But some patients may be cured if the main (primary) tumor and all of the areas of cancer spread (metastases) can be removed by surgery. The best success rate is when it has spread only to the lungs.

How fast can you get into MD Anderson?

How long will it take to get an appointment? The hospital average is seven to 10 days; however, it varies for each center.

How much does a second opinion cost at MD Anderson?

Pathologists requesting a second opinion may send the surgical material directly to us. The minimum charge for a consultation and report on referred slides prepared elsewhere is $272. Any additional testing that is necessary to render a diagnosis will be charged in addition to this fee.

What are the chances of dying from sarcoma?

The 5-year survival rate for people with localized sarcoma is 81%. About 18% of sarcomas are found in a locally advanced stage. The 5-year survival rate for people with locally advanced sarcoma is 56%. About 15% of sarcomas are found in a metastatic stage.

How long can you live with sarcoma?

5-year relative survival rates for soft tissue sarcomaSEER Stage5-Year Relative Survival RateLocalized81%Regional56%Distant15%All SEER stages combined65%Feb 2, 2021

How fast can sarcoma spread?

The growth rate of soft-tissue sarcoma is highly variable, but in general it will grow noticeably over weeks to months. Any mass that grows in this time frame needs urgent medical evaluation.

How do you know if sarcoma is spreading?

CT or CAT scan: This is a type of x-ray that takes clear, detailed pictures of your insides and the tumor or lump. This test may also be done to see if cancer has spread.

How aggressive is sarcoma?

It is aggressive and often spreads to other areas of the body, particularly the lungs or liver. These tumors can cause pain and a mass can usually be felt in the abdomen.

Can you beat sarcoma?

Most people diagnosed with a soft tissue sarcoma are cured by surgery alone, if the tumor is low-grade; that means it is not likely to spread to other parts of the body. More aggressive sarcomas are harder to treat successfully.

Can you go to MD Anderson with no insurance?

If your insurance plan is not accepted at MD Anderson, or if you do not have insurance and are paying for your own care, you will be asked to pay a deposit for your first appointment at MD Anderson. The deposit is only an estimate, but the actual charges may be higher or lower based on the actual services received.

What is financial clearance healthcare?

Patient Financial Clearance determines which patients are likely to pay and connects those that potentially qualify for financial assistance with the right programs. Now you can recommend the appropriate financial pathway for every patient, in real-time.

Can I go to MD Anderson without a referral?

Getting an appointment with us is easy. You can request an appointment directly, with no physician referral, through our patient access specialists.

Is MD Anderson private or public?

MD Anderson Cancer CenterCare systemPublicTypeSpecialistAffiliated universityUniversity of Texas Health Science Center at Houston, Texas A&M College of MedicineServices13 more rows

What is the purpose of Coverage for All?

The mission of Coverage for All is to simplify public and private health insurance eligibility information in order to help more people access coverage. They aim to centralize the distribution of information and eligibility requirements, encouraging more people to enroll, thereby lowering the ranks of the uninsured.

What is copay relief?

Co-Pay Relief Program – This program provides assistance for fees not covered by insurance and was expanded to include sarcoma patients. Patients must financially and medically qualify for the program.

Can you get disability if you have sarcoma?

If you have been diagnosed with sarcoma and are unable to work and earn a living, you may be eligible for Social Security Disability Benefits. The linked PDF document contains more information and related resources for Social Security benefits.

Does Eli Lilly have a patient assistance program?

Patient assistance program to help patients with financial need receive their prescribed Eli Lilly and Company (Lilly) medications at no cost .

Is the Northwest Sarcoma Foundation a non profit organization?

The Northwest Sarcoma Foundation is a non-profit organization committed to providing education and support to patients and families who are living with sarcoma. They strive to provide timely and accurate information regarding research and treatment options, and offer overall support by creating local networks throughout the Northwest. The Foundation is pleased to offer HELP$, a need-based financial aid program for adult sarcoma patients currently undergoing treatment. Its service area includes the five-state region of Washington, Oregon, Alaska, Montana, and Idaho.

What is Smart Patients Sarcoma Community?

The Smart Patients Sarcoma Community is an online discussion forum where members share advice and support with other patients and caregivers.

When does the Sarcoma Alliance meet?

Meets the third Wednesday of each month from 12:00 to 1:30pm. In Redando Beach : Sarcoma Alliance Networking Group. Meets the 2nd Saturday at 11:00am at the Wellness Community, South Bay Cities.

What is the Starlight Foundation?

The Starlight Foundation for children and teens with cancer. Dedicated to the creation and distribution of programs that empower seriously ill children and teens to address the challenges that accompany prolonged illness – and give them back their childhoods.

What is the National Children's Cancer Society?

The National Children’s Cancer Society offers a family support program, transportation assistance fund and emergency assistance fund to support families throughout the United States during their child's cancer treatment.

What is cancercare assist?

CANCERcare Assist. A national non-profit organization whose mission is to provide free professional help to people with all types of cancer through counseling, education, information and referral and direct financial assistance.

What is a cancer database?

A database of organizations that provide cancer patients and their caregivers with emotional, practical, and financial support services. The database can be searched by type of assistance provided, cancer type, and keyword.

What is the planet cancer group?

Planet Cancer Sarcomas Group: Planet Cancer is a community of young adults with cancer—the ages between "pediatric" and "geriatric."

What is a sarcoma medical group?from sarcomaalliance.org

A sarcoma medical group consisting of all specialties, including surgical, orthopedic and medical oncologists; radiologists; pathologists; and oncology nursing as well as rehabilitation services.

What is Sarcoma Ireland?from sarcomaalliance.org

Sarcoma Ireland – a patient and caregiver-led group with platforms on Facebook , Instagram , TikTok, and Twitter. Stow. Pomocy Chorym Na Miesaki “SARCOMA”. SELNET – Connects researchers and medical professionals for sarcoma from Europe and Latin America.

Is Sarcoma Alliance a 501c3?from sarcomaalliance.org

Sarcoma Alliance is a nonprofit 501c (3) organization. All services provided by The Sarcoma Alliance are provided free of charge.

How many sarcoma trials has AnzSA been involved in?from sarcoma.org.au

ANZSA has been involved in more than 30 sarcoma-related studies and clinical trials, both locally and internationally. We are also proud to have awarded more than 30 local researchers with grants worth over $1.2 million.

Does sarcoma discriminate by race?from sarcomaalliance.org

It works closely with the medical profession and other nonprofits. Sarcoma does not discriminate by age, gender, or race. Every year, 15,000 individuals in the United States face the fear and uncertainty that comes with a new sarcoma diagnosis. For these patients and their loved ones, the Sarcoma Alliance is a crucial source of guidance, education, ...

Does NORD endorse organizations?from rarediseases.org

There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice.

Can a sarcoma be lonely?from sarcomaalliance.org

It can be lonely finding out you have a sarcoma. We can connect you with others facing similar challenges. We believe the most successful patients are informed and connected to others for social support.

First, Do Your Research

What is sarcoma? It is important to take the time to understand the basics of your diagnosis. Knowledge is power. We have all heard of breast, prostate, or brain cancer, but chances are sarcoma is not familiar to you or your family. The first step in becoming your own personal advocate is to learn more about sarcoma.

Select a Treatment Center

It is essential to find the right fit for treatment. Start by identifying a high-volume sarcoma center, one that treats a minimum of 50 sarcoma patients yearly. Because sarcomas are rare, you will need treatment by a care team that specializes in this disease.

Prepare for Your First Appointment

Inquire as to what imaging, pathology, or lab tests may be needed before your first appointment. You will likely be required to send your health care record, and discs of imaging (if any) in advance of your appointment. Most information can be found on the patient portal, so it is important to sign up early and follow all of the directions closely.

Ask for Help

Your advocate will act as your own personal defender, looking out for your best interests, and advocating for your needs. This can be a family member, partner, friend, co-worker or someone in the community that you trust. Your advocate should be available to participate in most appointments, taking notes for documentation and reference purposes.

Talk with Loved Ones

The conversation with family and loved ones about cancer is a difficult but important step. When a parent or guardian is involved, the age of the child (ren) will be important in deciding what and how much you should tell about a cancer diagnosis.

Consider Work and Personal Finances

If you are employed, contact your human resources representative to understand medical benefits and costs related to your insurance. You will need to consider not only the costs related to your oncologist and other team members, but also imaging, pathology, and lab tests.

Finally, Take Care of Yourself

It is essential to take care of your mental health during your cancer journey. Counseling is working with a mental health professional to cope with the challenges that come with a cancer diagnosis. Counseling can help you understand your feelings and reactions, and it provides a safe place to talk about your worries.

What is Smart Patients Sarcoma Community?from sarcomahelp.org

The Smart Patients Sarcoma Community is an online discussion forum where members share advice and support with other patients and caregivers.

Where are corporate apartments for sarcoma patients?from sarcomahelp.org

ASCF's corporate apartments in Houston, Texas, are offered to sarcoma patients and/or their families free of charge. These apartments allow sarcoma patients from around the world to receive treatment at MD Anderson Cancer Center.

What is the Children's Oncology Group's long term follow up guidelines?from sarcomahelp.org

The Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers were developed as a collaborative effort of the Nursing Discipline and the Late Effects Committee and are maintained and updated by the Children’s Oncology Group’s Long-Term Follow-Up Guidelines Core Committee and its associated Task Forces. The purpose of these guidelines is to provide recommendations for screening and management of late effects that may potentially arise as a result of therapeutic exposures used during treatment for pediatric malignancies.

What is the Starlight Foundation?from sarcomahelp.org

The Starlight Foundation for children and teens with cancer. Dedicated to the creation and distribution of programs that empower seriously ill children and teens to address the challenges that accompany prolonged illness – and give them back their childhoods.

What is the National Children's Cancer Society?from sarcomahelp.org

The National Children’s Cancer Society offers a family support program, transportation assistance fund and emergency assistance fund to support families throughout the United States during their child's cancer treatment.

What is a cancer database?from sarcomahelp.org

A database of organizations that provide cancer patients and their caregivers with emotional, practical, and financial support services. The database can be searched by type of assistance provided, cancer type, and keyword.

What is the planet cancer group?from sarcomahelp.org

Planet Cancer Sarcomas Group: Planet Cancer is a community of young adults with cancer—the ages between "pediatric" and "geriatric."

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