How do I contact the specialty pharmacy for Sucraid?
To contact the specialty pharmacy, call 1-833-444-2745. The Sucraid ASSIST ™ program is designed as a resource for Sucraid ® patients, caregivers, and healthcare providers. The program provides information on CSID and how to diagnose CSID, as well as financial assistance, unique dietary needs, and peer support.
What is Sucraid assist ™?
The Sucraid ASSIST ™ program is designed to be the primary resource for Sucraid ® patients, caregivers, and healthcare providers, where ASSIST stands for “Access and Support Services in Sucraid ® Therapy”. What are Sucraid ASSIST ™ Services?
What is Sucraid ® (Sacrosidase) oral solution?
Sucraid ® (sacrosidase) Oral Solution is an enzyme replacement therapy for the treatment of genetically determined sucrase deficiency, which is part of congenital sucrase-isomaltase deficiency (CSID). Sucraid ® may cause a serious allergic reaction. If you notice any swelling or have difficulty breathing, get emergency help right away.
How much does Sucraid cost?
The cost for Sucraid oral solution (8500 intl units/mL) is around $8,085 for a supply of 236 milliliters, depending on the pharmacy you visit.
What does Sucraid help with?
Sucraid® replaces sucrase, which helps break down sucrose to prevent the symptoms associated with poorly digested (malabsorbed) sucrose, which may cause a variety of GI symptoms associated with CSID, not just diarrhea.
How do you get Sucraid?
Sucraid® is a drug that is only available by prescription, but Sucraid® is not available at retail pharmacies. The only way to get a Sucraid® prescription filled is through the specialty pharmacy. Call the specialty pharmacy at 1-833-444-2745.
Does Medicare cover Sucraid?
Sucraid is a prescription medication used to treat sucrase deficiency that occurs in people with a congenital sucrase-isomaltase deficiency (CSID). While Sucraid may help to treat this condition, it cannot cure CSID. This medication comes in the form of an oral solution and is not covered by Medicare.
Is there a substitute for Sucraid?
Invertase, present in Kerry's BIOINVERT® 200 solution, is an enzyme which hydrolyses sucrose like the sucrase-isomaltase enzyme, with closed characteristics. BIOINVERT® is already used in England as a substitute to SUCRAID® with empiric dosages.
How expensive is Sucraid?
The cost for Sucraid oral solution (8500 intl units/mL) is around $8,736 for a supply of 236 milliliters, depending on the pharmacy you visit. Prices are for cash paying customers only and are not valid with insurance plans.
Can CSID cause weight gain?
Symptoms of CSID Other symptoms may include nausea, vomiting, or reflux-like symptoms. In some children, these digestive problems can lead to failure to gain weight and grow at the expected rate (failure to thrive) and malnutrition.
What foods should be avoided with CSID?
You should also avoid processed meats such as bacon, sausage, luncheon meat, deli meat, liverwurst, and pâté since many of these food items are cured with sucrose or have starch fillers.
Does Sucraid raise blood sugar?
With Sucraid, sucrose (table sugar) can be absorbed from your diet and your blood glucose levels may change. Your doctor will tell you if your diet or diabetes medicines need to be changed. Side effects to watch for: Some patients may have worse abdominal pain, vomiting, nausea, or diarrhea.
What are the side effects of Sucraid?
Adverse reactions as a result of taking Sucraid® may include worse abdominal pain, vomiting, nausea, diarrhea, constipation, difficulty sleeping, headache, nervousness, and dehydration.
Can you eat oatmeal with CSID?
Foods to avoid or limit Many people with CSID can tolerate some amounts of starch but not sucrose. Examples of starches include barley, bran, bread, crackers, oats, pasta, quinoa, and rice. Foods that are the least tolerated by people with CSID include (3):
What sugars to avoid with CSID?
Symptoms of Congenital Sucrase-Isomaltase Deficiency (CSID) can be managed through diet by avoiding or limiting sucrose (table sugar) and starch intake.
Is CSID a rare disease?
General Discussion. Congenital sucrase-isomaltase deficiency (CSID) is a rare inherited metabolic disorder characterized by the deficiency or absence of the enzymes sucrase and isomaltase.
Can you develop CSID later in life?
The word congenital means present at birth, and most congenital disorders are diagnosed when one is an infant or in early childhood. However, many patients with Sucrose Intolerance due to CSID are being diagnosed later in life, when they are in their teens or even when they are adults.
Is CSID a rare disease?
General Discussion. Congenital sucrase-isomaltase deficiency (CSID) is a rare inherited metabolic disorder characterized by the deficiency or absence of the enzymes sucrase and isomaltase.
Does CSID go away?
CSID is a chronic issue that does not go away with gradual exposure or with time. Just as you went through a learning period to fully understand your disorder, other people also need time to learn and adjust.
Is CSID life threatening?
Often, children are anxious about the unknown and make inaccurate assumptions about the future. Reassure your child that, in general, CSID is not a life-threatening disorder, but it is life-altering. They will have to be diligent about their diet and medication routine for the rest of their lives.
What is Sucraid ®?
Sucraid ® is an FDA-approved drug for the treatment of genetically determined sucrase deficiency, which is part of Congenital Sucrase-Isomaltase Deficiency (CSID). Sucraid ® is an enzyme replacement therapy, providing a substitute for the sucrase enzyme in the small intestine that is missing or not working in people who have CSID. CSID may also be called Sucrose Intolerance, carbohydrate maldigestion or intolerance or Genetic Sucrase-Isomaltase Deficiency (GSID).
What is sucrasid oral solution?
Sucraid ® (sacrosidase) Oral Solution is an enzyme replacement therapy for the treatment of genetically determined sucrase deficiency, which is part of Congenital Sucrase-Isomaltase Deficiency (CSID).
What is the function of sucraid?
Sucraid ® facilitates the breakdown of the complex sugar (sucrose) into its simpler forms, enabling the absorption of the simple sugars from the small intestine into the bloodstream where it can be used by the tissues and organs in the body as a source of energy.
What is sucrose made of?
Sucrose is a complex sugar called a disaccharide, created by the combination of two simple sugars ( monosaccharides ), glucose and fructose.
Can CSID cause bloating?
Talking to your doctor about your CSID symptoms — especially when they involve bloating, gassiness, and diarrhea — might seem embarrassing. But sharing these details and your medical history helps your doctor make a diagnosis.
Can you put Sucraid in hot water?
NEVER HEAT SUCRAID® OR PUT IT IN WARM OR HOT BEVERAGES OR INFANT FORMULA. Do not mix Sucraid ® with fruit juice or take it with fruit juice. Take Sucraid ® as prescribed by your doctor. Normally, half the dose of Sucraid ® is taken before a meal or snack and the other half is taken during the meal or snack.
Does sucrose help with CSID?
Sucraid facilitates the breakdown of the complex sugar (sucrose) into its simpler forms, enabling the absorption of the simple sugars from the small intestine into the bloodstream where it can be used by the tissues and organs in the body as a source of energy. In clinical studies of CSID patients, sacrosidase, the active ingredient in Sucraid, was shown to provide significant relief for most patients of the gastrointestinal (GI) symptoms associated with CSID. Sucraid can help affected individuals maintain a more normal diet that can include foods that contain sucrose.
What is a sucrasid oral solution?
Sucraid ® (sacrosidase) Oral Solution is an enzyme replacement therapy for the treatment of genetically determined sucrase deficiency, which is part of congenital sucrase-isomaltase deficiency (CSID).
How cold should sucraid be?
Sucraid ® should be refrigerated at 36°F-46°F (2°C-8°C) and should be protected from heat and light.
Is Sucraid available by prescription?
Sucraid ® is available by prescription only. The information on this website should not take the place of talking with your doctor or healthcare professional. If you have any questions about your condition or if you would like more information about Sucraid ®, talk to your doctor or healthcare professional, or read the full Prescribing Information provided on the package insert that accompanies Sucraid ®.
Does Sucraid work in sucrase deficiency?
Sucraid ® has not been tested to see if it works in patients with secondary (acquired) sucrase deficiency.
Can sucraid cause a reaction?
Sucraid ® may cause a serious allergic reaction. If you notice any swelling or have difficulty breathing, get emergency help right away.
Does Sucraid break down starch?
Sucraid ® does not break down some sugars that come from the digestion of starch. You may need to restrict the amount of starch in your diet. Your doctor will tell you if you should restrict starch in your diet.
Can you change blood glucose levels with Sucraid?
Tell your doctor if you have diabetes, as your blood glucose levels may change if you begin taking Sucraid ®. Your doctor will tell you if your diet or diabetes medicines need to be changed.
What is Sucraid assist?
The Sucraid ASSIST ™ program is designed as a resource for Sucraid ® patients, caregivers, and healthcare providers. The program provides information on CSID and how to diagnose CSID, as well as financial assistance, unique dietary needs, and peer support. The ASSIST in the Sucraid ASSIST ™ program stands for “Access and Support Services in Sucraid ® Therapy.”
How to fill a prescription for Sucraid?
Here are the steps for filling a prescription for Sucraid® from the specialty pharmacy: The physician must complete the Sucraid ® Prescription Form and fax it to 1-866-850-9155. Current health insurance must be reported for review. Financial information will be collected if assistance is requested or needed.
How to diagnose CSID?
The diagnosis of CSID may also be aided by either of two breath tests. Both tests can help detect whether the enzyme sucrase-isomaltase is working by examining one’s exhaled breath. The first is called the carbon-13 sucrose breath test, because one consumes a sugary drink of sucrose that contains a natural, stable version of carbon, called carbon-13 ( 13 C). If the patient has little or no working sucrase-isomaltase enzymes in their intestine, there will be less carbon-13 gas exhaled than if working sucrase-isomaltase enzymes were present. The carbon-13 breath test is thought to directly measure sucrase activity and, as such, is the most definitive test that can aid in the diagnosis of CSID that does not require a procedure to obtain tissue samples from your intestine.
What is the test for sucrase deficiency?
Historically, the definitive test for diagnosing sucrase deficiency and Congenital Sucrase-Isomaltase Deficiency (CSID) has been a test called the disaccharidase assay. This assay requires a diagnostic procedure usually performed by a gastroenterologist (physician who specializes in the gastrointestinal system). This procedure (called endoscopy) involves the insertion into the body of a scope, which is an instrument used to view internal areas of the body. Gastroenterologists use endoscopic procedures to examine various areas of the intestinal tract. If warranted, a gastroenterologist will obtain a tiny tissue sample from the wall of the intestinal tract, for evaluation with a disaccharidase assay in a special laboratory.
Can CSID cause diaper rash?
The diarrhea associated with CSID can be frequent and acidic, which can cause severe diaper rash. The diarrhea associated with CSID also may be explosive, as a result of gas buildup in the intestine. Symptoms.
Can you fill a Sucraid prescription at a corner pharmacy?
A prescription for Sucraid® cannot be filled at your corner drug store. It is filled by only one specialty pharmacy that ships Sucraid ® to you or your prescribing physician. The specialty pharmacy is US Bioservices 1-833-444-2745.
Is a second breath test accurate for CSID?
There may be other reasons why one has higher than normal levels of hydrogen gas in one’s exhaled breath, so this second breath test may not be as accurate in detecting CSID. Additionally, many people are not hydrogen producers naturally, so the test may create a false negative in those individuals. Diagnosis.
What is a patient assistance program?
Patient assistance programs (PAPs) are usually sponsored by pharmaceutical companies and provide free or discounted medicines to low income or uninsured and under-insured people who meet specific guidelines. Eligibility requirements vary for each program.
How much does a free drug card save?
The free Drugs.com Discount Card works like a coupon and can save you up to 80% or more off the cost of prescription medicines, over-the-counter drugs and pet prescriptions.
What is a sacrosidase?
Sucraid (sacrosidase) is a member of the digestive enzymes drug class and is commonly used for Sucrase-Isomaltase Deficiency.
