Full Answer
Are there financial assistance programs for people with cystic fibrosis?
In addition, many states run cystic fibrosis-specific financial assistance funds to help support the costs of care. The website NeedyMeds provides an up-to-date list with dozens of assistance programs directed to people who have been diagnosed with cystic fibrosis.
Should I use a healthwell grant to pay for cystic fibrosis treatment?
Using a HealthWell grant to cover premiums may be a better option than treatment-specific cost shares. HealthWell’s Cystic Fibrosis Treatments Fund is designed to assist eligible people living with cystic fibrosis with cost-shares associated with CF-specific treatments.
What kind of research does the Cystic Fibrosis Foundation Fund?
Research We Fund. The Cystic Fibrosis Foundation supports a wide range of research that focuses not only on improving the quality of life for people with cystic fibrosis today, but also on accelerating innovative research and drug development to add tomorrows.
What is the CF Foundation doing?
The CF Foundation is the world's leader in the fight against CF, and our scientific portfolio reflects our drive to provide effective treatments and -- one day -- a cure to every individual with this disease. Learn more Path to a CureLeading the fight
What is a compass for cystic fibrosis?
What is compasscan?
What time does the Compassis open?
Is CF case management free?
Can Compassteam help you?
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About this website
What is a CFF grant?
The California Fire Foundation (CFF) offers grant opportunities to fire departments, firefighter associations and community-based organizations whose vital projects focus on keeping Californians, our state's communities and first responders safe!
What is CF peer connect?
CF Peer Connect is a one-to-one peer support program for people with CF and their family members ages 16 and older. No matter what you're going through, there is someone who has been through a similar experience for you to share, learn, and connect.
What type of disease is cystic fibrosis?
Cystic fibrosis (CF) is a genetic condition that affects a protein in the body. People who have cystic fibrosis have a faulty protein that affects the body's cells, tissues, and the glands that make mucus and sweat.
What type of disease is cystic fibrosis answers Com?
Cystic Fibrosis (CF) is an inherited disease that causes the glands that make mucous, saliva and sweat to not work properly.
What makes cystic fibrosis fatal?
Respiratory failure. Over time, cystic fibrosis can damage lung tissue so badly that it no longer works. Lung function usually worsens gradually, and it eventually can become life-threatening. Respiratory failure is the most common cause of death.
What limitations does a person with cystic fibrosis have?
What kind of limitations does someone with CF have? People with CF can live very full, normal lives. There are no limitations to their exercise, diet, or activities. However, due to the different lung infections that they can get, they should not meet or talk with other patients with CF in-person.
Is CF a disability?
People living with cystic fibrosis may apply for Social Security Disability Insurance or Supplemental Security Income, programs that serve as a source of income and health insurance coverage for people who are unable to work due to their health status.
How long do people with CF live?
Today, the average life span for people with CF who live to adulthood is about 44 years. Death is most often caused by lung complications.
Who gets cystic fibrosis the most?
Cystic fibrosis is one of the most common genetic disorders in white people in the United States, occurring in one of every 3,200 live births. It is less common in African Americans (1 in 17,000), Asian Americans (1 in 31,000) and Native Americans.
What is an interesting fact about cystic fibrosis?
Cystic fibrosis (CF) is the most common fatal genetic (inherited) disease in North America. 2. CF occurs when a person inherits a mutated (abnormal) copy of the CFTR (cystic fibrosis transmembrane conductance regulator) gene from each parent. Approximately 2000 CFTR gene mutations have been linked to disease.
What is fibrosis disease?
Pulmonary fibrosis is a lung disease that occurs when lung tissue becomes damaged and scarred. This thickened, stiff tissue makes it more difficult for your lungs to work properly.
What type of mutation causes cystic fibrosis?
Mutations in the CFTR gene cause cystic fibrosis. The CFTR gene provides instructions for making a channel that transports negatively charged particles called chloride ions into and out of cells.
Is cystic fibrosis a gene or chromosomal mutation?
Cystic fibrosis is a disease that is caused by an abnormal gene. An abnormal gene is called a genetic mutation. The gene that causes problems in CF is found on the seventh chromosome. There are many mutations (abnormal genes) that have been shown to cause CF disease.
What are other names for cystic fibrosis?
Cystic fibrosisOther namesMucoviscidosisSpecialtyMedical genetics, pulmonologySymptomsDifficulty breathing, coughing up mucus, poor growth, fatty stoolUsual onsetSymptoms recognizable ~6 month8 more rows
Compass Online Service Request Form | Cystic Fibrosis Foundation
**NOTE: It may take 3-5 business days for your case manager to review your Compass Online Service Request form before contacting you. If you need immediate assistance within the next 1-2 business days, please call Compass at 844-COMPASS (844-266-7277).
Compass - Patient Assistance Service - Cystic Fibrosis Foundation ...
Compass - Patient Assistance Service by Cystic Fibrosis Foundation serving Greenville, NC. Cost: Free. This program covers residents of All US states and territories.
What is the CF Foundation?
The CF Foundation is the world's leader in the fight against CF, and our scientific portfolio reflects our drive to provide effective treatments and -- one day -- a cure to every individual with this disease.
What is the Cystic Fibrosis Foundation?
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
What is CF in medical terms?
Cystic fibrosis (CF) is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.
Which court rules on the Affordable Care Act?
U.S. Supreme Court Rules on the Affordable Care Act
Is the journey to end CF a straight line?
The journey to end CF isn't a straight line. It's an evolving map with many paths and unique challenges. It requires an ambitious research agenda to accelerate treatments and drug development for the underlying cause of the disease, and ultimately deliver a cure.
Is cystic fibrosis a straight line?
The journey to end cystic fibrosis isn't a straight line. It is an evolving map with many paths and unique challenges. It requires an ambitious research agenda to accelerate treatments and drug development for the underlying cause of the disease and ultimately deliver a cure.
What are the grants for CF Lifestyle Foundation?
The CF Lifestyle Foundation offers $500 grants to pay for physical activities such as lessons in swimming, horseback riding, or rock climbing; golf and sports team fees; classes in yoga, dance, or martial arts; gym memberships, and sports camps.
What is the Cystic Fibrosis Foundation?
The Cystic Fibrosis Foundation's patient assistance program , Compass, offers personalized service to help with the insurance, financial, legal, and other issues faced by anyone with cystic fibrosis. While Compass doesn’t give out money, it does conduct assessments of insurance benefits during open enrollment and connects patients to insurance providers. It can also connect people with CF to community organizations and government programs that will help pay for rent, utilities, food, home repairs, car payments, and pharmaceutical assistance programs that lower the costs of specific drugs. 1
What is the Boomer Esiason Foundation?
The Boomer Esiason Foundation offers several types of financial support to patients with cystic fibrosis including:2
What is CF social worker?
A CF social worker can assist with finding additional financial assistance programs near you. Many smaller organizations award money for the care of CF patients living in a specific city, state or region. In addition, many states run cystic fibrosis-specific financial assistance funds to help support the costs of care.
How much does HealthWell cover?
HealthWell offers two kinds of grants. The first provides up to $15,000 to cover CF prescription medicine copayments for households 500% of the federal poverty level. The second provides up to $2,000 to cover the costs of nutritional supplements, probiotics, and vitamins.
Is cystic fibrosis covered by insurance?
August 2, 2019. Even with insurance, the costs for cyst ic fibrosis care can be astronomical. Just a few of the many costs that are not covered by insurance include prescription co-payments, prescriptions, and procedures uncovered by insurance, nutritional supplements, and vitamins, travel to and from CF care clinics far from home, ...
About Our Cystic Fibrosis Treatments Fund
HealthWell’s Cystic Fibrosis Treatments Fund is designed to assist eligible people living with cystic fibrosis with cost-shares associated with CF-specific treatments. In addition, HealthWell is also able to consider assisting with the full cost of hypertonic saline solution, nebulizers paired with treatments, and certain handsets.
Do I Qualify?
HealthWell bases eligibility on an individual’s medical, financial and insurance situation. To qualify for HealthWell’s assistance, applicants must meet the following eligibility requirements:
About Cystic Fibrosis
Cystic fibrosis (CF) is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs.
What is CF in medical terms?
Cystic fibrosis (CF) is an inherited disease that causes progressive damage to the respiratory system and chronic digestive system problems but can involve multiple organ systems of the body.
How many people have cystic fibrosis?
Cystic fibrosis affects more than 30,000 people in the U.S., although there are approximately 10-12 million carriers of the CFTR mutation in the U.S., the disease affects males and females equally. Other names for this condition include:CF, cystic fibrosis of pancreas, fibrocystic disease of pancreas and mucoviscidosis.
What happens if you are eligible for assistance?
If you are eligible for assistance, the application will be instantly approved, and you will be enrolled into the program.
What is a compass for cystic fibrosis?
Compass is a personalized, one-on-one service that provides people living with cystic fibrosis and their families a partner in dealing with challenges related to life with CF, no matter where you are in your CF journey.
What is compasscan?
Compasscan help you navigate challenges so you can focus on what is important to you. We have helped thousands of people with CF and their families deal with all kinds of issues. If you are dealing with a problem, we've likely heard it before and can work with you to find solutions.
What time does the Compassis open?
Our regular hours of operation are Monday through Thursday, 9 a.m. until 7 p.m. ET and Friday, 9 a.m. until 3 p.m. ET. Compassis closed during the following times so that case managers can spend time with their families:
Is CF case management free?
Our team of case managers strive to provide excellent service to anyone living with CF or their loved ones, regardless of income or insurance status, and the service we provide is completely free and confidential. We listen closely, explain thoroughly, and work through issues from start to finish.
Can Compassteam help you?
While the Compassteam can help you with many of life's challenges, there may be instances where we have to decline assistance for certain topics outside of our scope of services. For example:
Pharmaceutical Assistance Programs
- AbbVie – CREON® CFCareForward Patient Support Program offers nutritional services to eligible patients, as well as financial and educational support for patients and families. 1-855-227-3493 Chiesi USA Chiesi USA offers support programs for eligible patients taking BRONCHITOL (mannitol) inhalation powder and PERTZYE(pancrelipase). Genentech, Inc. G...
Financial Assistance
- Boomer Esiason Foundation Financial Assistance Programs Cystic Fibrosis Family Connection List of Financial Assistance Programs MedicalAssistanceTool.org A dedicated search engine that allows users to search for financial assistance resources available to them, their loved ones or patients in their lives through the various biopharmaceutical industry programs available for pati…
DME and Copay Assistance
- CF Vests 4 Life “Our mission is to provide life saving equipment and medication donated from CF patients in first world countries to CF warriors in third world countries, where healthcare access and/or insurance coverage is lacking with the goal of ‘providing more mornings to CF warriors the world over.'” Foundation Care Reimbursement Assistance Live 2 Thrive Live 2 Thrive Offers copa…
Additional Nonprofit Resources
- Claire’s Place Foundation Cystic Fibrosis Assistance Programs Patient Advocate Foundation Mediation and arbitration services for patients with debilitating and life-threatening illnesses. PatientWorthy.com Patient Worthy is an online publication that provides relevant information to rare disease patients, caregivers and advocates, alike.