What is the CF Foundation's care center network?
The CF Foundation's care center network combines clinical research with medical care best practices, and has been cited by the National Institutes of Health as a model of effective and efficient health care delivery for a chronic disease.
Why choose an accredited care center for CF care?
To ensure that people with CF continue to experience steady gains in length and quality of life, the Foundation helps its accredited care centers provide a standard of CF care with guidelines based on the latest research, medical evidence, and consultation with experts on best practices. Learn more about the Foundation's clinical care guidelines.
What does it take to maintain CF Foundation accreditation?
To maintain CF Foundation accreditation, each center undergoes a review every year and periodic re-accreditation peer site visits to make sure each care center provides a consistently high standard of care.
Is there a CF lab in the clinic?
Yes, in Pediatric CF clinic (4700 Sunset Blvd.), the lab and pharmacy are located on the 1st floor. In Adult CF clinic (1515 N. Vermont Ave.), the lab and pharmacy are located on the 2nd floor. Do I have to see the social worker or dietitian at every visit?
What resources are available to families with cystic fibrosis?
We trust the following sites to provide useful information to parents, kids, teens and adults seeking more information on cystic fibrosis:www.esiason.org. ... www.happyheartfamilies.com. ... www.cff.org. ... www.cfww.org. ... www.iacfa.org. ... www.cfliving.com. ... www.respiratorycare.medscape.com. ... www.mycysticfibrosis.com.More items...
What type of disease is cystic fibrosis answers Com?
Cystic Fibrosis (CF) is an inherited disease that causes the glands that make mucous, saliva and sweat to not work properly.
What is the 6 foot rule with cystic fibrosis?
Germs can spread as far as 6 feet when someone coughs or sneezes, landing on surfaces or in another person's eyes, nose, or mouth. That's why it's important for people with CF to stay at least 6 feet away from others with CF and anyone with a cold, flu, or infection.
What is the longest a person with CF have lived?
At 86, Marlene Pryson may be one of the oldest individuals living with cystic fibrosis. During her long life, she has dedicated many years of service to helping CF families as a CF clinic coordinator and family liaison.
What type of disorder is cystic fibrosis classified as?
Cystic fibrosis is an example of a recessive disease. That means a person must have a mutation in both copies of the CFTR gene to have CF.
What is the classification for cystic fibrosis?
Traditional classification of CF mutations based on their cellular phenotype. Class I: protein synthesis defect; class II: maturation defect; class III: gating defect; class IV: conductance defect; class V: reduced quantity; and class VI: reduced stability.
Is cystic fibrosis a disease or disorder?
Cystic fibrosis is a disease that causes thick, sticky mucus to build up in the lungs, digestive tract, and other areas of the body. It is one of the most common chronic lung diseases in children and young adults. It is a life-threatening disorder.
Is cystic fibrosis chromosomal or autosomal?
Cystic fibrosis is an autosomal recessive disorder, meaning that is not inherited solely from the mother or father as in sex-linked disorders.
What is the CF Foundation?from cff.org
CF Foundation. With the help of donors who believe in the economic, social and cultural impact of quality education , the CF Foundation is building promising futures for students in Citrus, Levy and Marion counties.
What is the Cystic Fibrosis Foundation?from cff.org
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
Why Choose Us?from chop.edu
The Cystic Fibrosis Center at Children's Hospital of Philadelphia is accredited for care, teaching and research by the Cystic Fibrosis Foundation.
Is cystic fibrosis a straight line?from cff.org
The journey to end cystic fibrosis isn't a straight line. It is an evolving map with many paths and unique challenges. It requires an ambitious research agenda to accelerate treatments and drug development for the underlying cause of the disease and ultimately deliver a cure.
Which court rules on the Affordable Care Act?from cff.org
U.S. Supreme Court Rules on the Affordable Care Act
Is the Cystic Fibrosis Center accredited?from chop.edu
The Cystic Fibrosis Center at Children's Hospital of Philadelphia is accredited for care, teaching and research by the Cystic Fibrosis Foundation.
What are the grants for CF Lifestyle Foundation?
The CF Lifestyle Foundation offers $500 grants to pay for physical activities such as lessons in swimming, horseback riding, or rock climbing; golf and sports team fees; classes in yoga, dance, or martial arts; gym memberships, and sports camps.
What is the Cystic Fibrosis Foundation?
The Cystic Fibrosis Foundation's patient assistance program , Compass, offers personalized service to help with the insurance, financial, legal, and other issues faced by anyone with cystic fibrosis. While Compass doesn’t give out money, it does conduct assessments of insurance benefits during open enrollment and connects patients to insurance providers. It can also connect people with CF to community organizations and government programs that will help pay for rent, utilities, food, home repairs, car payments, and pharmaceutical assistance programs that lower the costs of specific drugs. 1
What is CF social worker?
A CF social worker can assist with finding additional financial assistance programs near you. Many smaller organizations award money for the care of CF patients living in a specific city, state or region. In addition, many states run cystic fibrosis-specific financial assistance funds to help support the costs of care.
Is cystic fibrosis covered by insurance?
August 2, 2019. Even with insurance, the costs for cyst ic fibrosis care can be astronomical. Just a few of the many costs that are not covered by insurance include prescription co-payments, prescriptions, and procedures uncovered by insurance, nutritional supplements, and vitamins, travel to and from CF care clinics far from home, ...
What is the phone number for cystic fibrosis?
Provides assistance for health insurance to adults with cystic fibrosis. Phone: (614) 466-1700. Website: www.odh.ohio.gov/wps/portal/gov/odh/know-our-programs/children-with-medical-handicaps/welcome-to. Note: Web site makes no reference to adult program, but program is funded by BCMH.
Is fibrosis a mental illness?
Cystic Fibrosis and Mental Health. Individuals diagnosed with a chronic medical illness, such as Cystic Fibrosis, are at increased risk of experiencing depression and anxiety. Learn More.
What is CF in medical terms?
Cystic fibrosis (CF) is an inherited disease that causes progressive damage to the respiratory system and chronic digestive system problems but can involve multiple organ systems of the body.
How many people have cystic fibrosis?
Cystic fibrosis affects more than 30,000 people in the U.S., although there are approximately 10-12 million carriers of the CFTR mutation in the U.S., the disease affects males and females equally. Other names for this condition include:CF, cystic fibrosis of pancreas, fibrocystic disease of pancreas and mucoviscidosis.
What happens if you are eligible for assistance?
If you are eligible for assistance, the application will be instantly approved, and you will be enrolled into the program.
Financial Assistance
- Boomer Esiason Foundation Financial Assistance Programs Cystic Fibrosis Family Connection List of Financial Assistance Programs MedicalAssistanceTool.org A dedicated search engine that allows users to search for financial assistance resources available to them, their loved ones or p…
DME and Copay Assistance
- CF Vests 4 Life “Our mission is to provide life saving equipment and medication donated from CF patients in first world countries to CF warriors in third world countries, where healthcare access and/or insurance coverage is lacking with the goal of ‘providing more mornings to CF warriors the world over.'” Foundation Care Reimbursement Assistance Live 2 Thrive Live 2 Thrive Offers copa…
Additional Nonprofit Resources
- Claire’s Place Foundation Cystic Fibrosis Assistance Programs Patient Advocate Foundation Mediation and arbitration services for patients with debilitating and life-threatening illnesses. PatientWorthy.com Patient Worthy is an online publication that provides relevant information to rare disease patients, caregivers and advocates, alike.