- Lymphatic Education & Research Network Contact: 516-625-9675 Population Served: Patients, caregivers, health professionals worldwide ...
- National Lymphedema Network Contact: 800-541-3259 or 510-809-1660 Population Served: Patients, health professionals worldwide ...
- Patient Advocate Foundation (PAF) Contact: 800-532-5274 Population Served: People in the U.S. with chronic, life-threatening and debilitating illnesses ...
Full Answer
Where can I find information about lymphedema treatment?
This is applicable for people who have lymphedema and/or lymphedema risk in both arms. Pfizer CDC Moderna Lymphedema Therapy Directory Connect with therapists and physicians who treat lymphedema, find local lymphedema treatment centers, look up lymphedema training programs, and learn more about lymphedema products from suppliers. Search
Is lymphedema treatment covered by insurance?
There is no cure for lymphedema, but it can be effectively treated. Learn more > The Lymphedema Treatment Act (LTA) is a federal bill that aims to improve insurance coverage for the medically necessary, doctor-prescribed compression supplies that are the cornerstone of lymphedema treatment.
What is the lymphedema treatment Act?
The Lymphedema Treatment Act (LTA) is a federal bill that aims to improve insurance coverage for the medically necessary, doctor-prescribed compression supplies that are the cornerstone of lymphedema treatment. Learn more > Make Your Voice Heard by contacting your members of Congress and asking them to support this important bill.
What is the National lymphedema network?
The National Lymphedema Network is dedicated to promoting the awareness of lymphedema and empowering people with lymphedema to live life to the fullest.
Is lymphedema cancer?
Lymphedema is a common cancer treatment side effect that can cause swelling in a patient's arm or leg. It may lead to discomfort, pain and infection. It may make it difficult for patients to find clothes that fit. Lymphedema can also lead to skin infections.
What should I wear for lymphedema?
Depending where the swelling is, you may be fitted with one of the following garments:sleeves for swollen arms.stockings for swollen legs.garments for lymphoedema in the fingers or toes.a compression bra or vest for lymphoedema around the breast or chest area.garments for lymphoedema that affects the genital areas.
Can a person work with lymphedema?
All experts agreed that lymphedema can restrict the ability to work and employability. The leading reason for limited ability to work and employability was restricted mobility or function of the affected limb along with time-consuming therapeutic modalities, pain and psychological stress.
Is there a lymphedema society?
The National Lymphedema Network (NLN) strives to increase awareness of lymphedema and related disorders through education, and promote and support the availability of quality medical treatment for all individuals at risk for or affected by lymphedema.
What should you not do if you have lymphedema?
Avoid trauma or injury to the affected area. Avoid heavy lifting with the affected arm. No new tattoos in the affected area. Do not wear tight clothing, bands, shoes, or jewelry on the affected area.
How do you sleep with lymphedema?
With lymphoedema of your head and neck, sleep with 2 or 3 pillows to raise your head and help the fluid drain. You can also raise the head of the bed by using blocks under the legs of the head of the bed.
Does lymphedema qualify you for disability?
You can suffer from a mild case of lymphedema, which is barely noticed, or you can suffer from a debilitating case of it that causes severe pain and makes use of the swollen limb almost impossible. If you have a severe case of lymphedema, you may qualify for monthly benefits for your disability.
Is lymphoedema a disability?
Lymphoedema is a chronic condition and not necessarily a disability, but if you think you may be entitled to a disabled driver's badge, you can get a form from the social services department of your local council. This has to be signed by your family doctor.
What is the lifespan of a person with lymphedema?
The life expectancy of a patient with this condition is limited to a few months to 2 years [6], [7]. Currently, the mechanism underlying the onset of lymphedema is unknown, and a treatment has yet to be established for preventing the onset of this disease.
Does lymphedema always worsen?
At first, the swelling may come and go. It may get worse during the day and go down overnight. Without treatment, it will usually become more severe and persistent.
How do you make lymphedema go away?
Treatment options may include:Exercise. Exercise helps to restore flexibility and strength, and it improves drainage. ... Bandage. Wearing a customized compression sleeve or elastic bandage may help to prevent an accumulation of fluid.Arm pump. ... Diet. ... Keep the arm raised. ... Infection Prevention.
Does lymphedema always progress?
Lymphedema is a chronic condition that does not improve and slowly worsens. Lymphedema progresses through four stages. Stage 0 indicates a normal extremity clinically, but with abnormal lymph transport (i.e., illustrated by lymphoscintigraphy). Stage 1 is early edema, which improves with limb elevation.
When should you wear a compression sleeve for lymphedema?
The most important time to wear your sleeve is during exercise or when you will be experiencing the pressure changes associated with air travel. Some people need to wear a compression garment 24 hours a day, while others only need to wear them during air travel.
What is the life expectancy of someone with lymphedema?
The life expectancy of a patient with this condition is limited to a few months to 2 years [6], [7]. Currently, the mechanism underlying the onset of lymphedema is unknown, and a treatment has yet to be established for preventing the onset of this disease.
How long do lymphedema wraps stay on?
Compression wraps can be worn for up to 7 days if you take good care of them. Here's how to make them last and keep them working right: Keep them clean and dry until your next doctor's appointment.
How can I reduce swelling in my legs from lymphedema?
Examples include:Exercises. Gentle contraction of the muscles in the arm or leg can help move the excess fluid out of the swollen limb.Manual lymph drainage. ... Compression bandages. ... Compression garments. ... Sequential pneumatic compression.
The Lymphatic Education & Research Network
The Lymphatic Education & Research Network (LE&RN) is an internationally recognized non-profit organization founded in 1998 to fight lymphatic diseases (LD), such as lymphedema (LE), lipedema (LI), and lymphatic malformation (LM), through education, research and advocacy.
LIVE Today Foundation
The LIVE Today Foundation supports the survivor and healthcare professional community through education, and is the only nonprofit to provide compression garments to survivors with lymphedema because of their inability to pay. Learn more about the LIVE Today foundation.
Lymphedema Treatment Act
The Lymphedema Treatment Act (LTA) is a federal bill that aims to improve insurance coverage for the medically necessary, doctor-prescribed compression supplies that are the cornerstone of lymphedema treatment.
What is the National Lymphedema Network?
The National Lymphedema Network’s mission is to empower our community of lymphedema practitioners and patients by providing educational opportunities, networking opportunities, and interventional resources.
When is lymphedema awareness month?
March was Lymphedema Awareness Month. The National Lymphedema Network (NLN) is so proud to be the organization that initiated this global movement of increasing awareness of lymphedema.
Is Luminis Health a full time PT?
Luminis Health PT is looking to employ full-time Lymphedema Therapists (OT and/or PT), who are interested in working with patients diagnosed with lymphedema in an outpatient setting.
What email address to send to Lymphnet?
All correspondences from affiliate membership only regarding submitted applications are to be sent to garments@lymphnet.org. Any email messages not related to submitted applications from affiliate membership will be disregarded. Any questions about the program can be sent to [email protected].
Why are therapists removed from the garment program?
At the discretion of the Garment Program Committee, individual therapists may be removed from participation in the garment program due to lack of professionalism including disrespectful communication with the garment program committee or any of the participating sponsors.
How many applications are granted for NLN?
Each Affiliate Member, that is each NLN Affiliate ID number, will be granted 10 applications per calendar year. This includes accepted and denied applications. In other words, a denied application counts as 1 of 10 applications.
Can you fax a paper to the NLN office?
Paper submissions mailed or faxed to the NLN office will not be accepted or acknowledged.
